The Command Center for Tick-Borne Illness

Scattered signals.Brought to light.

Lyme doesn't show up in one place. It's a symptom here, a lab result there, a bill you didn't expect — and no one connecting them. LymeHQ brings it all together, in one place you control, so the pattern finally becomes visible.

Just diagnosed? Start here See How It Works

Signals we connect

Lab results you can't readMade plain-language
Symptoms nobody trackedTurned into a trend
Care you couldn't findLyme-literate providers
Costs no one warned you aboutMade visible & appealable

One command center · You hold the keys

476,000

Americans diagnosed and treated for Lyme each year

5–10%

have symptoms lasting 6+ months after treatment

Years

many spend searching for a diagnosis

One

place where it finally comes together

Figures: U.S. Centers for Disease Control and Prevention — Lyme disease data & surveillance. The 476,000 estimate covers people diagnosed and treated, which CDC notes may include treatment on clinical suspicion.

Why LymeHQ Exists

Lyme is not usually named at the first visit

A visit that named something else
The visit that named it

Every one of those visits is time, money, and being told it is something else.

Being somewhere along that row is ordinary, not a personal failure. Keep your own record of dates and symptoms — it is the one thing that travels from one visit to the next.

Seven is an average reported by people already living with persistent symptoms. It describes that group — not everyone who is bitten, and not a prediction for any one person.

Seven clinicians before diagnosis: MyLymeData patient registry, LymeDisease.org. A patient-reported average from people with persistent symptoms, not a clinical rule.

The data exists. Nothing connects it.

Lyme patients aren't short on information — they're short on a place where it all comes together and finally makes sense.

Today

Everything, everywhere, disconnected

Each piece of your health lives in a different silo, and none of them talk to each other — least of all to you.

Specialty labs arrive as PDFs you can't interpret
Symptoms go untracked, so patterns never emerge
Providers see a fraction of your history
Costs pile up with no map to navigate them
Researchers can't reach the real-world data

With LymeHQ

One place, and you hold the keys

Everything in one command center — generated by living your care, orchestrated only where you allow it.

AI reads your labs and explains them plainly
Tracked symptoms become a visible trend line
Providers see what you consent to share
Costs surfaced, denials appealed, aid available
Privacy-safe data advances the search for a cure

01 · Who this serves

Patients first — then everyone helping them

LymeHQ starts with the patient and becomes shared infrastructure for the people working toward answers.

01 / PATIENTS

you can use this today

Your command center

The whole journey in one place — with you in control of your own data, always. And the core of it already runs: signup, consent, daily tracking, lab reading and Beacon, end to end today, on invented data.

Understand your labs in plain language
Track symptoms and see honest trends — "not enough data" is an answer here
Beacon, a companion that reads your record only with your consent
Your household counts too — a dog's tick test can quietly warn the family
Find Lyme-literate care in a directory where a person checked each listing
Understand what care costs and how to challenge a denial — the guides are here; the tools are not built yet

Start the six-step journey

And the people beside them

designed for — not built yet

Designed, too, for the people carrying someone else's care. When caregiver access comes it will be delegated access done right — their record with their consent, acting on their behalf never as them, an audit trail that shows who really acted. Until then, the education library is already yours: free, public, no account.

Written for caregivers

02 / PROVIDERS

you can open the portal today

The whole spectrum of Lyme-literate care

Tools that cut administrative burden and surface what matters before the visit — for every kind of clinician this illness actually involves.

MDDONDAcupuncturistsVeterinarians — not yet

A public directory where every listing was checked by a person before it appeared — an approval means someone reviewed what was submitted, nothing wider
Consented patient history at a glance — and only what they share
Anchored treatment-response figures around patient-reported dates — association, never attribution
A pre-visit brief, opened before the appointment — patient-enabled, figures and dates only
Appeal drafting — not built yet

Written for clinicians

03 / RESEARCHERS

you can query the commons today

Data that doesn't exist yet

A window into real-world tick-borne patterns that never shows a group smaller than five people — consented, aggregate, audited.

Aggregate counts and cohorts — never records
Cohort feasibility in minutes — counts you can shape by question, saved definitions
Exports released only after an ethics review, every one audited
Academic and industry both — industry is a separate kind of account, and the difference is enforced everywhere access is decided
Findings that flow back to patients — group figures only, never a treatment comparison

Written for researchers

02 · The connective tissue

One loop, every arrow consented

The patient is the only one who sees the whole journey — LymeHQ is where the pieces finally connect. Each hand-off below is a gate the database enforces, not a promise the app remembers.

The loop closes

Three stations, one direction — and what the commons learns comes back.

This path works today

Every step needs consent. Every step is written to an audit log.

The return leg carries group figures only — never a comparison between treatments, and never a number about you.

Findings return as group figures. Your own numbers are never shown beside them, and nothing is sent to you.

Orientation only — nothing on this drawing is a measurement. Every claim it makes is one we test on every build, not one we are asking you to take on trust: consent changes are recorded by the database itself, not by the app; a clinician reaches your record only when you have both added them and turned sharing on, and both must be true; every look at health information is written to a log that cannot be edited or erased afterwards; and research results are released only for groups of five people or more. The return leg is drawn solid because it works today. It carries group figures only — a finding may report what a group looked like, never what a treatment did.

Patient
Lives the record — symptoms, labs, treatments, the household.
consent + care relationship · audited
Provider
Sees what one patient shares — both locks open, revocable on the next page load.
opt-in · groups of five or more · ethics-reviewed
Researcher
Sees patterns of five or more — never a record, never a name.

Group figures flow back to the patients who made them possible

See how the whole loop works

03 · The data story

The signal — and who holds the keys

A command center is only as good as what it connects, and only as trustworthy as who controls it. Both halves, plainly.

Where the signal comes from

Your tracked recordavailable now
Symptoms, medications, labs — recorded by living your care, shared only where you allow.
The household veterinary sentinelavailable now
A dog's positive tick test quietly warns its household — a signal no registry captures, framed as where ticks are, never what anyone has.
CDC Lyme surveillancelive CDC data
Thirty-two years of public surveillance, pulled from the live API and shown with its counting rules drawn in.
Medicaretest records only, not real Medicare data
Medicare claims history — patient-authorized, over FHIR, the standard format health systems use to exchange records, into your own record.

Consent is architectural

Not a policy promise — the way it's built

Every sharing choice starts off — and all-off is a complete answer, never nagged.
Your consent history is written by the database itself. App code cannot skip or rewrite it.
Revoke, and it's gone on the provider's very next page load — proven on a live session, not promised.
Researchers see groups of five or more, never records — enforced in the database, where it cannot be forgotten.

See the surveillance data Your data, your rules

The standards position

in progress — draft for discussion

Tick-borne illness has no standard data representation — we're drafting the first entry for it in USCDI+, the US standard list of health-record data elements, so every system that touches Lyme data can finally speak the same language.

Read the draft element set

Free · Open to Everyone · No Account Needed

Start with knowing

Our education library is free and open to anyone — whether you were bitten yesterday, you've been searching for years, or you're caring for someone who has.

STAGE 01

Before & after a bite

STAGE 02

Understanding the illness

STAGE 03

Treatment & beyond

Browse the Full Library →

I'm building LymeHQ because I've lived the problem it solves. Even early on, the fragmentation is impossible to miss — and patients who've carried this for years deserve better than a system that leaves them to assemble it alone.

Isaac Stritsman · Founder, LymeHQ

What Guides Us

Patient-owned, community-powered

You own your data

Your health data is yours. You decide who sees what — granular, revocable, always.

Evidence over dogma

We label what's proven, what's promising, and what's community experience — honestly.

Built with the community

LymeHQ grows with the people it serves — patients, providers, and researchers together.

Platform in active development

The patient tools are working — as a demo

Signing up, symptom tracking, lab reading and Beacon now run end to end — on invented data only. This is a working preview, not a launch. The free education library is genuinely public and finished. You are welcome to try both.

Just diagnosed? Start here Browse the education library